Anyone have the same thing? Advice?

Ro

Hey guys, this is going to be long because I just need to vent because this has been super overwhelming. If this has happened to you or you know someone it’s happened to, please leave some advice 💛 So for about the last 2 years, my periods have been SUPER irregular (I get maximum 3 a year) so I started doing some research and discovered that I had symptoms of what I thought was pcos so I went to see a new obgyn (my old one quit practicing) and explained everything to her. She ordered blood work to check my hormone levels and said that my testosterone was normal which ruled out the possibility of pcos. However, my prolactin was slightly elevated. There are a lot of things that can influence prolactin levels so she ordered another round of blood work to retest my levels which ended up coming back higher than the first time. After the second round of blood work she sent me to an endocrinologist. My first appointment with her was 2 months after my second round of blood work with my OB. At my first appointment with the endo, she went over my reasoning for being there and my menstrual history, she sent me for a third round of labs that same day to check my prolactin again since it had been a few months since I’d been tested. Once again, my prolactin came back elevated and I was officially diagnosed with Hyperprolactinemia. My endo ordered an mri to check my pituitary gland a week later. My mri was just a few days ago and my endo called me yesterday with my results. I have a SMALL TUMOR growing on my pituitary gland which is causing the hyperprolactinemia, so now I have to take meds once a week to hopefully drop my prolactin levels back to normal, in 2-3 months I have to get ANOTHER round of lab work to make sure the meds are working, if not then my dosage will be doubled. And in a year I have to get another mri to make sure the tumor isn’t growing, and I have to consult with my eye doctor about checking my peripheral vision because the tumor can harm the optic nerve and if that is the case this will become a much more serious situation.

Thank you if you took the time to read all this 😅 basically this is just a really overwhelming situation as I’m only 20 years old and was told I have a tumor in my head 😅😅