Ladies with endometriosis, when do you get pain and other symptoms?

Question

I've noticed this last few months that my pain is now pretty much every single day, maybe a day or two in a month when it's not too bad. It used to only be on my period, then when I had my period and ovulated, now it's permanent. Anyone else the same? I'm undiagnosed at the moment, but being tested, awaiting the surgery.

Answer

I have pain every single day. You need laparoscopic surgery down to diagnose Endometriosis so it’s good your getting it checked. I’ve had multiple surgeries and it helps for a little bit but then the pain comes back. Of course Endometriosis is not a curable disease so it’s always something you would have to deal with. But your pain doesn’t automatically mean it’s Endometriosis, hopefully your clear and it’s something else!

Answer

Thanks ladies for voting, seeing how many of you have this either every day or most days has made me feel less mental!

Answer

Yeah that is the surgery I'm waiting for, sadly with covid it's been a very slow painstaking process! I have the scan next week, but they said that's a formality for the gynecologist so they don't complain lol I've spent around 10 years being tested for loads of other conditions, so they've ruled out all the usual suspects (Lupus, MS, Crohns disease, IBS etc) and now they are looking down this route finally. Something we discounted for years because they believed I had Lupus for 5 of them! Glad I'm not alone with it being constant, it's got so much worse since coming off the pill (hubby had the snip) but the pill had its own side effects so its a double edge sword! Discussing the idea of hysterectomy. Apologies for the ramble, I feel like I've got no one who gets what is happening to me and I've felt like I'm mad all these years, I even went to A&E because I had blood in my urine and they had no clue why, just sent me home. Been such a frustrating journey!

Ladies with endometriosis, when do you get pain and other symptoms?

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