Does anyone have a child who gets them? This flu season has been particularly stressful because our youngest had his first febrile seizure October 2021 at 22 months old and now, he gets one every time we get sick and he develops a high fever. He’s had about 7 or 8 now since last year. It never gets easier to watch. They’re puzzled because he has had so many but because it’s always with a fever & illness, it’s not considered epilepsy.

We have a neurologist on board with us and we have Ativan as a rescue medication just in case the seizure lasts longer than 5 minutes, but that’s all we can really do. It makes me feel helpless as a mother. Most children apparently outgrow them by the age of 5, but that still gives us potentially two more years of this 😔 Does anyone else’s child experience these? How often? How do you cope? Every time we get sick I’m an anxious mess. He just had another yesterday morning and I’ve barely been able to sleep since.