Huge Rant/Frustration
When I was around 13 ish weeks, I found out I had tested positive for the gene of muscular dystrophy. I also found out baby was a boy. Since he’s a boy, his chances of having the gene goes way up since boys have XY chromosomes. My OB referred me to my local maternal fetal medicine, where my whole pregnancy was monitored through them. I had to see both MFM and OB on a regular basis. Our first appointment was around 15 weeks, they did an ultrasound of him and told us that for what I tested positive for wouldn’t be able to be picked up on an ultrasound. They told us we had the option of getting an amnio. I was not too sure about getting one since I had never heard about it before. I told them I needed some time to make my decision. This is the only visit we had a bad experience. The lady who we met with was very much trying to push termination. This was after I said I needed some to think about getting the amnio. I said “I cannot bring my heart to do that”. Because in my mind, I was thinking I already seen him multiple times, I’ve heard his heartbeat. I just can’t. Then she goes “can you take care of a special needs child”. That was the first and last time I seen her. I spoke to a genetic counselor and decided to not get an amnio because I felt like I didn’t have enough fluid for them to collect and did not want to have a miscarriage. My first pregnancy ended in a miscarriage. I really wanted my baby and did not wanna risk anything. So we opted in for a collection of cord blood at birth. One of the nurses gave us a folder that she told us had all of the information the hospital will need in order to do that. Even gave us a test tube. Fast forward to 37 weeks, I have to be induced due to high blood pressure. I bring the folder with me and tell my nurses first thing about it. They tell me “we’ve never seen this before”. So as my labor is progressing and those pitocin contractions are hitting, I’m also stressing that this won’t get done. Long story short, they re assured us that they figured it out and even showed me the test tube right after I had given birth. Fast forward again to about a couple of days ago, I get a call from a nurse at MFM. She tells me “oh they can’t run the test because the blood was collected in the wrong tube” I said “you mean the tube you guys gave me?” She goes “oh I don’t know, it was suppose to be a yellow tube but it wasnt”. Not even an I’m sorry or anything. They screwed up. We had been waiting for the results and realize that’s why it’s taken so long. Now we are going to talk to his pediatrician about our next steps. I’m so frustrated that our son was handled with such little care. Not to mention, all of their ultrasound techs hurt me so bad and I had to tell them multiple times to stop. Really thinking about putting a bad review on google lol
Let's Glow!
Achieve your health goals from period to parenting.