So a little background I was diagnosed at 15 and I’m now 21 with classic and hyper-mobility

Currently I am 20 weeks pregnant (this is a high risk pregnancy) and I’m in excruciating pain because my hips are falling out of place anywhere from 3-10 times a day. It makes walking so painful that I’ve pretty much given up unless I have to walk. I’ve tried explaining this to my dr and she sent a referral to a high risk dr, this high risk dr office is also the office my normal ob uses for ultrasounds so I have my anatomy scan with them on the 30th. But this referral was sent on the 16th and was supposed to be a completely separate appointment. They were supposed to call to set up that appointment but never did so I waited three Monday and then halfway through Tuesday when I just couldn’t handle the pain anymore called my ob again and they said go to the er.

In the er (last night/this morning the 20th/21st) baby was checked he is fine and I’m sent down to an er room where I am given an iv, blood tests and an ultrasound. I told the dr that at this point I am in constant pain and the only way I can cope is if I am laying down with a pillow between my legs, he said that I should discuss bed rest with my ob when I got home.

So! (Sorry this is so long) I call my ob they yet again pawn me off on this other “high risk” office while also telling me that they don’t normally do bed rest because it’s “not in practice and tell me to call the other office. I give them a call they leave me on hold for 15 mins (I get it they are busy) but when the lady answers she is being so rude! I inform her that I was never called to set up the appointment and by the er’s request I need to be seen ASAP and she again is so rude saying they never got the referral and that “I’ll speak to the nurses next door but I can’t guarantee anything and I’ll let you know, goodbye” and hangs up. She never called me back which means I will be trying to get myself there tomorrow and trying to figure this out because I need to go on bed rest at this point because I’m completely miserable....

What would you do??? I’m a ftm and I’m scared to death I’m trying to switch drs but I feel I need to get this part at least sorted out first because I can’t really drive or get from please to please very easily. I just feel tossed around like me and my son don’t matter at this point. I need help on what steps I should take, what I should say to get them to put me on bed rest because I can no longer get to work because I can’t walk without my hips dislocating but no one wants to freaking listen to me!!!!!!

Ehlers Danlos Syndrome