Hello Ladies !
(Sorry for my English im Spanish I can understand everything but is hard for me to speak or write with out mistake )
My name is Leonarda mom to a 8 years old and a baby 18 months old ! I had 2 miscarriages . Last one in feb 13 .. It's have been hard for me he last couples years ! Before I got pregnant of my little one I lose a baby .. I did not the reason why that happened to me , so I got pregnant 3 months after again , I was so happy to know I was pregnant again , BUT when I was 4 months I went to the doctor to know the gender of my baby ... It's was a boy my husband scream of happiness I wanted a girl since we have a boy already , everything was so great until the doctor told us it was something wrong with the baby's heart .... U have not idea how I was feeling the whole world just came apart for me ...
Long story short , I got amnio sintesis done and every done to know what was wrong with the baby ,, everything came out good !doctor told us we were having a healthy baby . It was just a little hole in his heart that will be closing up with the time .... So I had an appointment ever 2 weeks because the baby wasn't growing up properly, but everything came out good .. At 39.5 I have a baby boy weighing only 4 pounds , I cried a lot of happiness but also I was scare it was something wrong and not body couldn't find what was wrong with him ,, 5 days later the genetic doctor called me I had to bring the baby back he was dying and and not body knows why until this Lady found out that he had a genetic condition called "methylmalonic acidemia with homocistinuria ",
no cure for but with treatments for the rest of his life he can be stable ,,, (the treatments are 3 medicines and one of that one is a b12 shot everyday I have to do it myself , he is a such a strong little chanttleman he does not cry anymore when I give him the shot )we had told that he won't ever walk , now he is walking he started at 14 months old . He has been doing everything like a normal baby , doctors can't believe how good he is,,, they told me that he won't make the first 2 weeks but guess what he did and I thank God for that every day ,, we have 25 % of chance to have another with the same condition. My husband n I have the genes that cause the disease that's why we have the chance of 1-4 . Jackson is a really miracle of God he survived .. And I'm pretty sure he will beat this , I had told that if we have another kid will help him a lot and yes I'm taking the chance again , I just lost another baby in February and now we are trying again and I think I m pregnant , I just hope this time the baby can stay with us and that God give us a healthy one ..
All I ask ... Is my last try also ..I use to read on glow all the stories and I ask 2 things God give them their bfp and bless them with a healthy baby ,, im not a church person but I believe in God and I know somewhere he has been there for me ! Always ! I asked him to give me the strength to be there for my son ,, and all I want is my son be happy so he is .. Ladies everything that u want in life U can get it just be patient and believe ... Wishing u all the best ,,
here is my son Jackson 17 months old ...
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