How to have hope when the doctor doesnt...

I'm 25 weeks and 3 days with my fourth son, Lincoln. At 17 weeks we found out at what was supposed to be our gender ultrasound , that something was not right....

At 19 weeks we saw our first specialist who confirmed there was likely a congenital heart defect as well as a slight kidney deformity...we took blood from the placenta since there was little to no fluid to test fir chromosome abnormalities..

At 24 weeks, we thought the baby was finally out of the woods, he had a heart defect and a kidney issue with his left kidney. But he would be ok. Then we did the ultrasound and found out his condition got worse. The genetic test results were finally back and he does have a slight defect, a syndrome rather called 22q deletion syndrome. His heart condition is classified as truncus arteriosus and will require multiple surgeries the first beginning within the first few months of his life. The most concerning and the reason some of my specialist seemed so hopeless, is because both of his kidneys now have multicystic displastic kidney disease. The fluid levels are so low it wasn't able to be measured. My dr said if he survives the next three weeks, a chance he doesn't think is likely, then we can discuss him being born, and what steps we can take to try and save him...

The chances are very low he will survive, but we have steroids for his lungs, we have dialysis after he is born and heart medications to stabilize him after he born. The dr believes he should have stopped growing, yet he is just as big as he should be if not bigger than his gestation. His heart beat is healthy and strong. He moves and kicks and responds to touch and sound. So we are having hope. Even if the dr says he shouldn't make it much longer. All we can do is beg for prayers and healing and be strong as long as he is being strong....no matter what the dr says or feels trust your heart.