In honor of world rare disease day

When I was 12 years old, we adopted a little boy named Jonah who had special needs but we didn't know his diagnosis until nearly 5 years later. Jonah has an extremely rare genetic disorder called Marshall Smith syndrome. There's less than 50 known cases of it in the world. It causes bones to age faster and the majority of people who have this disorder cannot walk, they have respiratory issues (Jonah has sleep apnea but others are less fortunate and require trachs.) Most cannot even eat by mouth. But he is such a light in the world. I love him so much!