I just received feedback today from my genetic testing and I'm a carrier for Spinal Muscular Atrophy (SMA). I'm waiting to hear when my SO can get tested. I'm very confused about what I'm seeing. My OB said it is unlikely that the baby will be born with it, we both have to be carriers in order for the baby to have SMA but he needs to be tested for us to know. It took 2 weeks for my genetic testing results to come back! Now we have to wait that long or more, depending on when we hear back from the office about an appointment. Has anyone else been in this situation? Is it correct that we both have to be carriers for our little one to have SMA? What does life look for someone with SMA? Can they have a fulfilling life? What kind of care do they need? Does this mean my siblings are also carriers? Or my parents? I searched online but I do not see anything that I can really understand. Any advice/words of wisdom are appreciated.