I am tearing up so much writing this it’s been such a long journey! After a scary hospital visit at 24 weeks for lack of fetal movement I got set up with a high risk OB. On August 29th at 26 weeks and 4 days I went to my high risk OB appointment ready to go to work right after. A few days before they had found a 10CM mass in my uterus and she had never seen anything like it . At this appointment we were told we had A confirmed TRAP pregnancy. TRAP is one of the rarest and most deadly conditions of pregnancy there is. At the beginning of my pregnancy we learned we had identical twins, at 9 weeks and 4 days we learned baby B had passed and that she would absorb and the pregnancy would continue as a singleton pregnancy. We were devastated but mourned and moved on ready to welcome our living daughter to the world. At that appointment we learned that was not the case and we had Twin Reversed Arterial Profusion syndrome (TRAP). It is where the passed twin continues to grow because my living baby is pumping it deoxygenated blood. By the time they found it I was too pregnant to have a cord ablation to sever the umbilical cord from the placenta it shared with my daughter. There is a 1 in 40,000 chance Of having TRAP and a 1 in 2,000 chance of having a condition is what considered rare so this was rare to an extreme. The mortality rate for the living baby is 50-90% and there have only been a handful of living babies ever to survive TRAP. The living baby normally develops heart failure due to the strain to pump all the extra blood. That same day we learned we had TRAP I was admitted to antepartum for fetal monitoring. I spent 55 days in antepartum until my daughter Delilah was born via a planned C section at 34+3 on October 23rd 2017 weighing 5lbs 3oz and 17.3 inches long. Her passed twin weighed around 2 and half pounds and was cremated and buried at the Hope garden of the hospital. I contracted almost the entire 55 days and was given terbutaline to stop the contractions that shot my heart rate up into the 230s and I almost had a heart attack. I wanted a vaginal delivery but Had I tried to deliver the TRAP twin it would have ripped my cervix open and I would have bled to death because she was deformed and shaped like a football and too wide. We were astonished we made it to our goal of 34 weeks and even though she looked good on the ultrasounds they thought pushing for 36 weeks was too risky and I still agree. My daughter went straight to the NICU with breathing difficulties. The day after she was born her left lung collapsed and despite all the fear this pregnancy had given me it paled in comparison to that 30minutes waiting in my recovery room to hear that the chest tube they were placing was successful. Every breath I took I felt like my head was underwater. My poor little baby girl was on 51% oxygen with a CPAP machine, a chest tube, feeding tube, and on sugar water for low blood sugar. Despite all the breathing difficulties she beat the one thing we were worried about with TRAP. Her echocardiogram showed NO heart damage which is UNHEARD of with TRAP. It took 12 hours for me to see my baby for the first time, 6 days to hold her for the first time, and 3 weeks and 4 days to bring her home. Being a NICU mom is the hardest thing I’ve ever done. Seeing your baby in an isolet covered in wires unable to open the door and help them if they cry is heartbreaking. She was so unstable the first 3 days we could only put a flat hand on her back if we wanted to touch her and had to whisper around her because any stimulation caused her stats to drop. On November 18th I FINALLY got to bring my miracle baby home. I saw the inside of Baylor hospital for 80 days straight. 59 of me being admitted and 21 days visiting the NICU every day. Going home without your baby is heart breaking. She is one of only a handful of living TRAP babies ever born and probably the healthiest ever recorded. She shouldn’t be here. I am so thankful she is because she is the light of her Dad and my lives and I will never take being her mother for granted. Welcome home Delilah Casey Fenn! 💜💜💜😭

First time I held her! 💜

Cowboy game tonight with Dad!

Night before I had her!

Finally getting snuggles at HOME from Mom!💜

EDIT: Here’s a picture of my tiny turkey getting swallowed by her outfit I got her 😂