MS update

Marissa

I usually don’t post about MS online anymore. Mostly because I keep telling myself that “I’m alright and have grieved my diagnosis”. I guess that isn’t true; last week I found out yet again treatments ARE NOT working. It’s a low blow since my options are limiting every time this happens. I’ve been on rebif, tecfidera and betaseron. I’m going on 7 year diagnosis but over 13 years of having this disease. I’m 27 years old. I’m upset lately because since my veins are terrible and my next treatment to be added to my other two; rituxan and cytoxan needs good vein use - plasmapheresis; I’m now getting a port a cath. I’ve seen the positives of it - believe me I understand but in 2015 I went into septic shock from a temporary port being placed that went infected - I had endocarditis, I lost the ability to walk, my pain increased by a million etc etc. I just want something good to happen to me and I haven’t gotten a break since my diagnosis . Thank you for letting me rant 💋💖

If anyone needs support I’m here for them.