Not even 2 weeks old my baby boy was flowen out to a hostpital to have open heart surgey at one week old not to mention i only hold him once when i gaved birth. Finding out at birth they had found out he had a birth deffect called " tetralogy of fallot" which is one of the rarest birth deffects. Which he has to have 5 surgies by tge age of 25. I never knewn i would be in the battle. By my baby boys side. Everyday is a constant battle for me that no one seems to understands plus trying to stay strong. Going back and forth to the hospital and going back home to make sure the house is ready for him to come home... They just drain all of his tubes and took out one of his lines in his belly buttons. All i can say is.. This little man is my little fighter. I gusse his daddy pick the right nickname for him when i was carrying him💪💙 my PICU warrior #TeamJayden