I got diagnosed when I was 11. I’ve always struggled with “growing pains” after diagnosis my health started getting worse. Now I dislocate at least two joints a day. And have POTS episodes that often can take four hours to go away. I do not do anything harsh on my joints (I don’t even take a physical exercise class) and it still continues to get worse. Not asking for sympathy but just wondering if anyone has advice and/or are in the same boat. Thanks.🧡🧡