Anyone else pregnant with an anen baby ? Baby was diagnosed at 12 weeks and second opinion also confirmed at 13 weeks.

for those who don’t know what it is . It is a very rare birth defect involving baby’s brain and skull. Some are missing parts of brain and skull. My baby has a brain but no skull to protect it. There is nothing that can be done Medically , the baby is considered “not compatible for life” and even though the baby is living and moving in the womb most doctors recommend “termination” as they will most likely pass shortly after birth, if they survive the birth. Looking for support group or other moms to talk to going through or have gone through this.

Update :I had my sweet baby girl 2/15/20 and she lived for 91 hrs (just shy of 4 days) we got to love on her and spend time with her for just a short amount of time but it was so worth it. If I had to do it again I would make the same choice to carry her to term. She did not meet our weight requirements for organ donation but she still touched and change the lives of so many people around us. 🥰💕 the support groups that helped me a lot was on Facebook

1) Anencephaly.info ( for moms/dads who choose to carry to term)

2) Anencephaly Hope ( for which ever choice you make/made to terminate/induce early or carry to term )