10 month old hemangioma

Does anyone else have a kid with a hemangioma? My daughter has one on her left side, or at least that’s what the doctors think it is. They haven’t done any bloodwork and I’m just praying it is benign. It started off the size of my thumb nail and is now about the size of a golf ball. She has her 5th ultrasound this Friday. It just keeps getting bigger and I can’t tell if it is causing her pain. She has to sleep in our bed at night and during naps because we have never been able to get her to fall asleep on her own and since we can’t tell if the hemangioma is causing pressure or pain we don’t want to leave her to cry so she just sleeps with us. The doctors just keep doing ultrasounds and I don’t know what best/worst case scenarios are for something like this. I haven’t been able to share my fears with my family because they make things worse by jumping to the scariest outcome. It’s so stressful holding all of this inside. Please does anyone have any experience with this 🙏🏼