Hypoplastic Right Heart Syndrome

Natasha
we just found out on the 18th that my unborn son may have hprhs. it's not a 100% certain diagnosis yet, but we have an appointment on december 7th to confirm it (or possibly get the news that they made a mistake, hopefully). are there any other parents going through this? 
hprhs basically means the right side of my son's heart is not developed correctly and will require open heart surgery immediately after birth and other surgeries throughout his child hood.