So I was finally diagnosed with stage 3 endometriosis back in November and I had my first lap surgery with my basic obgyn. He removed a large cyst on my left ovary, plus part of the ovary was removed, he also found endo on the outside of my uterus, my ovary, my colon, and my intestines. He unfortunately could not removed any of it. He did ablation (burned it) on the surface, but didn’t touch the tissue on my bowels. He wasn’t specifically trained in excision, so last month I did a lot of research on doctors who specialize in excision and a specific technique of removing the diseased tissue. I was finally able to see the new surgeon yesterday, and she wants to do more surgery on me. I knew that was the deal initially, but I was more so seeking other methods of managing pain and symptoms besides birth control. I’m not a fan of suppressing my hormones with the pill, and thankfully neither is this doctor. So it looks like I’m scheduled for an exploratory surgery in April and then the excision surgery will be scheduled afterward.

I’m quite scared and not looking forward to it at all because with the way she explained it, it is going to be much more extensive and recovery time will most definitely be longer. She also wants to do a hysterosalpingogram to make sure I don’t have blockage in my tubes and a hysteroscopy to check the inflammation and tissue on the inside of my uterus.

She also mentioned that depending on the amount of diseased tissue she has to take out and how deep it is, sometimes there’s a possibility that there won’t be enough healthy tissue left to put back together. So in those cases they put in a temporary membrane (don’t remember what she called it). But it basically keeps the remaining tissue together while it grows back. Then she’ll have to go in again for a third surgery to remove the membrane thing and put the grown tissue back together.

Has anyone ever had this membrane thing put in them and taken out?! And has anyone ever had the hysteroscopy or hysterosalpingogram procedure done?

I’m totally freaking out. I’m not sure if I want to go through with any of it. But I also don’t want to be on the pill for the rest of my life and I don’t want to be in pain anymore or have to worry later on when it continues to grow all over my bowels and everything.