Has anyone had their baby diagnosed with enlarged and cystic kidney in utero?

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Had a private gender scan, and they found my daughter has one enlarged and cystic kidney. I’m 17w3d today- I called the foetal unit and they won’t do anything until I’ve had their 20 week scan (I’m in the UK so this is the NHS).

Has anyone had a first hand experience of this and can offer some guidance? I’m none the wiser and the waiting around is killing me