Question anyone have OHSS?

Question

Please let me know if you had OHSS

Answer

The doctor was able to drain the cysts, untwist the ovary, and then it regained blood flow (thank goodness). So I still have both intact!

So sorry you had to have another tap, but I definitely think that putting out more urine and being taken off the IV fluids is a good sign! Did they let you go home?

Just curious... Have they done all of your taps directly from your abdomen? All of mine were done vaginally. I've never actually talked to someone else that has had OHSS so I'm just curious about other people's experiences.

Answer

Hey ladies ! I had horrific ohss earlier this year! I was in the hospital and icu for 11 days! Couldn't tap me because the fluid was evenly dispersed within the tissues. ..all 40 lbs of it..yikes! Liver and kidneys started shutting down! I was told I could never do a fresh cycle again! It took me 3 months to be able to walk again even because the nerves in my legs went out of place! Scariest thing I had ever went through! Lucky for me we had 7 Frosties! First fet ended in chemical and 2nd fet worked so far...i am 8w1d. I didn't know I had this strength in me...but I kept on going! Glad I did!

Answer

How are you feeling? Did you get to go home yet?

Answer

Starting to put out more urine now ! And off my IV I think I can take that as a good sign right now . Have to see how the day continues. Hopefully discharged today .

Answer

I can't believe you had to go through all that , did they remove your ovaries ? I had my 7th tap yesterday . Finally able to hold down a little food and liquids . My stomach is still swollen and very tender to touch . I can't believe how long this can last .

Answer

(I had to make a new post because my comment was so long lol)I'm so sorry. OHSS sucks and is so painful. It lasted several weeks for me. I was off work for about 2 months. The symptoms slowly started to decrease and eventually my output of urine became more than my intake of fluids and my weight/swelling started decreasing. Even after I got the "all clear" from my fertility doctor my ovaries were still extremely enlarged. After about a week back to work I started having excruciating pain in my abdomen. I ended up being admitted to the hospital, where I stayed for a week with uncontrolled pain before my OB decided I had no choice but to have surgery. Turns out my right ovary kept growing even after the symptoms of OHSS had subsided and was 10x the normal size and full of cysts. It ended up twisting and was dying inside me. I'm now 6 weeks out from surgery and feel SO much better.

Answer

I had OHSS with my IVF cycle.

Question anyone have OHSS?

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