Basically for anyone who doesn't know what this is, it's where the left ventricle of the heart doesn't grow and develop correctly. My whole word came crashing down on Wednesday when I heard the Dr tell me my baby has a very serious and rare congenital heart defect. After going through <a href="https://glowing.com/glow-fertility-program">IVF</a> to finally conceive I thought was a miracle enough. I am now given this diagnosis for my baby girl 😢. Initially the world stopped and the only sound I heard over the Dr talking was the uncontrollable sobs that were coming from me. I wasn't even sure how to get out of bed yesterday I managed to move myself from my bed into my Baby girls room where I sat and screamed and cried for hours. How does this happen and why my baby girl? Her heart can never be fixed, however there is surgery.... 3 open heart surgeries. The first being anywhere from 3-7 days after she is born. This means i will more than likely not even be able to hold my baby girl until after surgery. She will be in the children's hospital for 4-6 weeks afterwards and can hopefully come home. This is so devastating to any parent. I am just curious if anyone else has gone through this or heard of it? I am at such a loss right now. This morning I went to have amniocentesis done to check for possible turners syndrome as well as trisomy 13 and 18. I'm Praying those come back normal and this little baby girl isn't at more risks. Sorry this is long we haven't told anyone other than our parents and my sister due to the tough decision we have to make depending on the amnio test I just felt as though I needed to vent.