Self Advocacy with the GYNO? PCOS/Endometriosis

Misses

Okay ladies, please bare with me, I'll try to make this quick and to the point without too much rambling. I have been having immense trouble with my lady bits for years. I'm nearly twenty eight now and have been having trouble since I started havung menses at nine. At this point in time, it's just simply become unbearable. I will be honest, I don't take the best care of myself, I smoke cigarettes and am overweight. I'm getting on the ball with these issues on cutting back smoking to quit for my health and have lost fourty pounds so far putting me at two hundred and twenty pounds. I have Epilepsy, Gastroparesis, Chronic Migraines, and EDS as far as physical problems go. So far, in the gynecological aspect, I can not get a single bit of help. My mother and two of my sisters have endometriosis. The issue: I have horrendously severe cramps that are absolutely debilitating and land me in the ER, make me vomit, and pass out when mensing. I fever, bleed profusely, have either constipation or diarrhea, when I urinate or deficate it is incredibly painful, the cramps get so severe that the pain goes into my thighs, calves, and the soles of my feet. The cramps are in my vaginal canal and rectum like a knife stabbing and slicing me, it feels as if my innards are going to either be tugged through my belly button or out of my spine. It feels as if I am bound inside by invisible barbed wire that just coils ever tighter constricting me and dragging across my insides. I can count on my hands the amount of times my wonderful husband and I have made love this year due to my issues and each time I bleed and am bedridden for two days. When mensing, can only lie in bed with a heating pad on my front and one on my back along with a salonpas lidocaine patch. I eat Ibuprofen and Tylenol like candy. Now, for this year, my periods were very sporadic, I had one about every three months. This hadn't happened to me often but this year it seemed a thing. This year I have been in pain like I'm on my menses every single day wether I am or not. I hadn't had my period for two months until nearly four months ago when I began my menses. Guess what? I am still on my menses. Like usual, bleeding horrendously, passing major clots. In the past, when I went to the GYNO I kept being told that I had PCOS even though my ultrasounds came out clear. They say that with my weight that must be it but there is never a single cyst on an ultrasound. I've had doctors outright laugh at me saying that I was too young or to seek medication elsewhere. I don't want medication, I want a laparoscopy. Is it wrong that I feel that I won't accept a diagnosis until they have actually looked inside and seen what is going on? How do I advocate for myself? How do I get this ball rolling to get this shit show on the road? What is the right and most efficient way to go about this? I'm so sorry for the rant and the graphic details, but my God, I am so exhausted with this.