So this is my fourth pregnancy 3rd baby as I’ve had a still born at 20 weeks previously. So as expected from my history I was very nervous at the beginning of my pregnancy I requested I got my stitch put in as early as possible that was done at 13 weeks so I could start to relax. Then all the pains and tightenings started I was in agony I couldn’t move out of bed the midwife said she’s sorry to say that if it is my body is trying to lose the baby although I could feel movements already and had a little bump there was nothing more they could do as I already have the stitch. So that was more stress but eventually it stopped and everything was going well. My scans were normal at 12.5 weeks although the doctor mentioned that I have fibroids but didn’t put in my notes so every appointment I had as I had more because I’m high risk the doctor or midwife always said my womb was bigger than usual when I told them about the fibroids they put it down to that one doctor I never even mentioned it to him he said to me when examining me do you have fibroids and I said apparently I do and just replied ok. Anyways fast forward to 19 weeks I had a midwife check and my fundus height was measuring 3 weeks ahead so she said not to worry you have your 20 week scan next week. So at my scan everything was measuring completely normal until they got to her heart. The sonographer just kept on going back to the heart until I asked is there something wrong and she said one of the connections to the heart didn’t look right she referred me to a fetal cardiologist I was so scared I didn’t know what to think my appointment was two days later . My baby was diagnosed with a right aortic arch which shouldn’t effect her life but if her trachea was being squeezed and she is struggling to breath and eat she would need a small surgery. I was then told that with this heart condition it’s usually connected to a chromosome disorder known as 22q deletion I was just bombarded with so much information it was overwhelming I was offered a test to find out wether my baby has this which will result in a condition called DiGeorge syndrome I choose not to because of the small risk of miscarriage and it wouldn’t change my mind about having her. I was sent to a growth scan as I was measuring 4 weeks ahead at 26 weeks now at this scan again everything seemed fine then I was told my fluid level was high and my baby’s brain is dilated. I had to see the consultant the next day for a rescan which he confirmed what he had seen and said there’s a space that is bigger than what it should be either this is just the way the baby is or her brain didn’t develop properly now I’m booked in for a mri to get a closer look and the doctor is talking about this test again but doesn’t want me to do it at 27 weeks because of the risk of putting me into labour and the baby will be to small so he wants me to do it a little further along but has informed me that this is all connected to this chromosome disorder. I’ve been told already my baby will be going straight to nicu once she’s born and I’m just waiting for this appointment feeling like I’m in limbo don’t know what to do feeling severely depressed and scared I have people around me but yet feel so alone I haven’t been sleeping and I still need to stay strong for my two other children I guess I just needed to speak and get it off my chest to why I’m posting sorry for the long post if you got to the end please pray for me and my baby