I was just diagnosed back in October, after being misdiagnosed for over 4 years. I still dont know what specific type I have because my doctor's being difficult about getting me in with the specialist I need to see. It's been getting progressively worse and worse. I can't turn my head over my shoulder anymore without my vision going black and getting dizzy. I can't stand or sit up without blacking out either. Its also started to effect my digestive system, so I get nauseous from eating at this point. I'm having trouble managing with daily life things. Is there anything I can do on my own to help myself? I'm desperate at this point.