Pcos stories ?

Question

Hey, ladies. My name is Nayeli, I’m 14 and got diagnosed with pcos over a year ago. I’ve struggled with most of the symptoms and pcos has really became a big part of who I am. In school we were given a chance to do our own research project. I chose this. Pcos isn’t often spoken about and majority of women don’t even know what it is. The purpose of my project is to inform women more about pcos and how it works. If anyone of you ladies would mind sharing your stories or anything about you experience with pcos, please do. This will be a great help to see how it affects different women. Thanks. 
How has pcos impacted you and the way you see yourself? 
What challenges do you face with disorder? 
What kind of support is helpful ?

Answer

Having always wanted to be a mom getting my diagnosis at 19 it crushed me. It sent me into a tailspin.  But I had been shaving (neck and face) since age 17.  I spent years in fertility treatments just to get pregnant with triplets only to give birth prematurely and have them all pass away.  I now have 1 son but the grief of my loss still lingers.  It’s been a very rough ride of acceptance of my body and learning to like myself.

Answer

Hey! Really love the idea! Pcos has effected my life in every way. I always wanted children only to get to my 20s and realize I couldnt crushed me and left me feeling very alone and worthless. Even now after 3 years of having pcos, I have only just now started to get my period back. I have had more of the extreme side effects from pcos such and hair loss and extreme weight gain. My husband has been amazing through the entire process but it has also had its toll on our relationship due to my insecurities and mood swings. Overwhelmingly the lessons I have learned through these past 3 years are, workout, drink water, go to a REAL DOCTOR OR OBGYN, take your meds and dont blame your symptoms for your not actually living. Spend time with those you love, go on vacations, be active in your own life or you run the risk of being consumed by this thing you have little control over.

Answer

Wow. I’m in awe. This is such a brave and great thing for a 14 year old to do, especially in school. 
PCOS hadn’t impacted me too much, until I started trying to conceive. It definitely makes me feel sad when I look at other women who have babies and think how lucky they are that they didn’t have to try too long or as hard to get their little precious baby. Also feel a bit discouraged, but also determined at the same time to have a baby. I’m having to jump through many hoops but I’m willing to do it. 
Challenges are lack of periods which mean lack of ovulation. Putting on weight super fast when a normal person wouldn’t put on nearly as much in that length of time. And the little bits of hair that shouldn’t be there as a woman. 
Support - from friends and family if you decide to tell them. Maybe being talked about more as a women’s issue so the stigma is taken away. 
And doctors. It can be the worst thing when you just feel like they’re judging you for this and that, and it feels like they’re begrudgingly helping you. Like it’s your fault you’re in the position. When you hop on the scales and you’ve put on weight and they tell you to just try to keep losing weight to try to conceive. Easier said than done. I’d need to consume 700calories or less a day to lose weight, that’s hard to stick to. Especially with a busy social life. And working full time. 
Hope this is what you were after. Good luck with everything 😊

Pcos stories ?

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