Update on my baby born with Holoprosencephaly
She has a 1% chance of surviving to age 1.
She's 10 months old now and doing great 🥰
She has many challenges. She is tube fed and as part of her brain deformity she also has CP and diabetes insipidus (chronic dehydration). She has little control over her own body. But she is literally the happiest baby I've ever met!
We are so blessed to have her in our lives. Her smile literally makes complete strangers melt. Her personality is so infectious.
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