Another post

So this morning Colton slept in until about 11. He usually wakes up at 8-9am on a normal day. Well when he got up he had blue lips and discolored legs. (Check out the color difference from his stomach to his legs) No fever, wasn’t cold, he hadn’t ate or drank anything (This did eventually go away and he was back to his “normal” red legs)

I automatically emailed his cardiologist since he JUST had heart surgery and the last time he had blue lips she blamed it on his heart. Well, she had a nurse call me back and tell me that I shouldn’t contact them with problems anymore. They only want to see him for his check ups. Since his holes were closed they won’t help him anymore.

SO now I’m on the hunt for a Rheumatologist to HOPEFULLY help my little baby. I am getting so tired of this. I got so excited for the heart surgery and now I feel like I’m in a new battle.

I am so tired of feeling like I’m doing this alone.