what do I do now??! (Hidradenitis suppurativa)

I got diagnosed with HS (hidradenitis suppurativa) when I was 11-12, I’m 17 now! I’ve been to so many doctors about the condition but I feel like they’re becoming less and less helpful. I’ve took almost every medication for it, creams and cut out dairy, but there’s still nothing. It makes me feel more ugly and disgusting. I get on my armpits, inner thighs and under my boobs. I just really don’t know what to do about it anymore, it makes me really worry about the future like if I ever get a bf, I avoid wearing dress and swimming often because I’m scared. Please I’ll take ANY SUGGESTIONS please loll

Thanks 💘