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My 13m old has a rare blood sugar issue & pituitary dwarfism(GHD). We didn’t know until after he was born. He is my third. My oldest has a rare speech disorder & that’s really it. We are about to have our fourth baby in a few months. Wasn’t a planned baby. My husband was about to get a vasectomy & I was on birth control. I’ve been really worried about it. I’m scared for babies health & how baby is gonna fit into the mix. Our third requires a lot a lot a lot a lot of our time between shots, feedings, cornstarch therapy, medical appts, and PT/OT/feeding therapies. There isn’t a lot of time left. One day at a time tho. All we can do. You’ll find a way.
Anyone pregnant and have a special needs child too?
So I am 18 weeks pregnant with our 3rd boy. My oldest is fine. My second was premature and has a rare neurological issue which mimics cerebral palsy. He has left side weakness and oral motor weakness causing him not to talking well (basically non verbal but uses every way to communicate). He is now 6yr old and has become harder to handle he sensory so he gets more physical hits or kicks when upset. I get so stressed about it. Since he doesn’t have autism ABA will not be covered. So we just have regular OT, but it still so hard as he so intelligent that things make him mad. At school they said he is the sweetest and easiest kid. I see a major different because he only gets mad around us. Anyways maybe I’m venting. I’m scared. Nervous. And just looking to see if anyone else has a baby on the way with special needs child already in the dynamic.
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