Endometriosis journey and husband appreciation

L

When I was 16, I started bleeding uncontrollably, and my hormones were off the charts, I ended up being diagnosed with a rare cancer in my uterus, it took them 6 months to diagnose me. Since the age of 16, I've been having health issues (I am 30 now)! I have had a blood clot in my arm and beaded arteries in my neck (fibromuscular dysplasia) if I get sick then I'm sick for weeks, I've had a lot of nerve problems, migraines with vision loss, pain from head to toe, extreme fatigue, several other problems. it all just got worse and worse over time, it takes everything I have to get through work then take care of my family, my house, my pets. I have been to several doctors, I have done multiple MRIs, CT scans, xrays and they found NOTHING wrong with me. I got really good at "fakin it until I make it" I even tried convincing myself that I wasn't miserable and the pain wasn't real. Finally after several years of misery, I seen a doctor that had me figured out within 20 minutes and had me scheduled for surgery. I had the surgery and she found so much more than she planned on. Stage III endometriosis, a displaced uterus, a paratubal cyst on my fallopian tube, allen master windows, endometriosis on my ureter and the vein connecting the uterus, several dense adhesions. I woke up with several incisions, they had to turn me every which way to try and get what they could out, they were unable to get it all out. I've been married for 8 years (together for 10) this man has never made me feel bad about being irritable, he always acknowledges that I'm truly in pain, he does what he can to help me, he is the most patient and caring husband and I couldn't have gotten more lucky! He was even there when I went through cancer as a teen. On another note: I feel like I may need some tips and tricks for handling endometriosis, we will also be discussing a hysterectomy at my follow up so any guidance or pointers on that would be appreciated. Thank you for taking the time to read this!