long read on my ultrasound report WHAT DOES IT MEAN???

De

December

Has anyone seen or had any of this with their pregnancies? I’m so confused and lost. I don’t understand most of it. Drs aren’t very helpful they just keep repeating “we really won’t know until baby is born” and one dr even made the comment that he didn’t know if baby will survive after delivery 😩 I know it’s long but if anyone would like to take the time to read it and maybe help me understand any one it that would be very much appreciated. Thank you.

Note : I started with triplets. Naturally 😬 lost the fraternal triplet very early on to what’s called vanishing twin syndrome. Only left a sack and placenta from baby C. Between 15-16 weeks I lost baby B to twin, twin transfusion. Baby A and baby B are identical and share a placenta. So the passing of baby B means he stays in there until I deliver baby A. This report is on my remaining baby, Baby A.

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COMMENT (7)

Sa

Posted at
Hi there! Not an expert by any means, but very familiar with medical terminology. So to catch you up on the context of these findings, the brain has little interconnected pockets called ventricles that are filled with a constant flow of cerebral spinal fluid, which helps to protect brain and spinal cord tissue. One such space is jamed the "lateral ventricle" which just means that its closest to the side of the head. Ventricles come in pairs, as each ventricle has a counterpart on the other side of the brain, so there is a left lateral ventricle and a right lateral ventricle. "Unilateral right lateral dilated ventricle - mild ventriculomegaly and upper limits of normal left lateral ventricle" means that the right ventricle is abnormally widened and the left one is still within normal limits, but at the large end. There is a solid structure towards the middle of the brain that forms one of the walls of the lateral ventricles called the choroid plexus, which consists of lots of blood vessels and helps produce cerebral spinal fluid. A "dangling choroid CSP" means that when one or both of the lateral ventricles are significantly dilated/widened, the choroid plexus ends up just dangling into the dilated ventricle. Essentially, it's another indication of the severity of the dilated ventricle - the concern with this is that a large ventricleusually means a deficiency of brain mass. The report says there's evidence of the dangling choroid, but it couldn't be visualized, which indicates that a structure that connects the left and right side of the brain called the corpus callosum has degenerated (genesis means creation, so "agenesis" means the loss of). The cerebellum is at the lower back of the brain, close to the brain stem, and is responsible for coordinating movement. A hypoplastic cerebellum means that its abnormally small. All of these findings combined suggests that there was an interruption in blood flow to baby A that deprived the baby of oxygen needed to grow. An interruption in blood flow that reduces tissue oxygen below a functional level is called ischemia, and the report says that the findings suggest there was a temporary but significant period of ischemia in baby A's brain due to the death of baby B - however, they can't rule out that these abnormalities could have happened independently of the death of baby B and are caused by genetic defect. Part of why they suspect it may be genetic is that the nasal bone is also abnormally small and the face is abnormally flat. Lastly, a "spaulding skull" means that the baby's skull bones are overlapping each other, which usually happens when the baby's brain has collapsed/shrunk due to either genetic issues or damage caused by ischemia. Again, I'm not an expert, so I can't tell you what the prognosis is or anything, but from mother to mother I think it's important for you to be prepared for a bad outcome, as these are pretty significant abnormalities, particularly concerning the brain.

Sa

Sabrina • Mar 4, 2024
Understandable! I dont know why some doctors think if they dont say anything, we wont know that something is very wrong - we know! Its more distressing to know and not understand, its frustrating that they haven't been having open conversations with you about all these results

De

December • Mar 3, 2024
Thank you! I’d rather be told straight than nothing at all. Which is what I feel my drs are doing. They don’t really say much. Just put all this in my online chart for me to read at a later time after I’ve left the hospital 😩

Be

Posted at
Prayers for you... Be strong.. i have no idea what the medical terminologies mean however i can say miracles happen.. trust and believe in yourself and God

Mo

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🙏🙏🙏🙏

An

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Praying!

mo

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I’m so sorry hun sending prayers 🙏🏻