Carriers for Smith-Lemli-Opitz.. And unplanned pregnancy.

Amanda
My husband and I have had 3 miscarriages.  With genetic testing, it was determined we're both carriers for Smith-Lemli-Opitz.  We were getting ready for IVF and embryo selecting when we accidentally get pregnant.  I'm 5weeks today.  VERY nervous about miscarriage AND possibly giving this child SLO... 
Anyone else have any experience with any of this??