Hopeful Post
Hi, everyone. I started this group almost a year ago when I had my daughter at 32w2d while she was in the NICU. I had NO ONE to talk to in my life about what was going on. I like this app because it allows you to post anonymously also. Anyway, just some encouragement to all of you... My daughter's birthday is tomorrow. Something I was worried I would never be able to enjoy with her. She's doing well but is still having some complications. She has a different therapy almost every day of the week and more doctor's appointments than I can count. On the bright side, she's the smartest baby I've ever met. She's funny and makes me smile all the time. When she was in the NICU, I felt like it pushed us apart because I was so afraid I would lose her that I didn't want to let myself get too attached. Now I feel like it is something that brought us closer together. I don't care that we spend most of our bonding time now with therapists or doctor's offices...I just want what's best for her. 
Having a NICU baby isn't something that goes away once they come home. I think about that time ALL the time and look at pictures constantly. I have boxes filled with some of her stuff I was allowed to take home. I often think about what a blur everyday became from the constant stress, fatigue, and running back and forth to the hospital. That part does get better, but it never goes away.
Anyway, here is my daughter Kailey at almost a year old (10 months adjusted). She's around 18.5 pounds and 26" up from 16" and 3.5 pounds at her lowest. She can "army crawl" and sit unsupported. We're still working on a lot in PT, but she does better every day.
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