Vulvodynia survivor?!?

Lilz

Is there anyone out there with experience with this disease? I was diagnosed recently after dealing with a two year struggle of interstitial cystitis (which is now manageable but not cured) and am doing everything in my power to heal myself. I have tried dilators, physical therapy and creams. I'm waiting to get acupuncture done as well. Please tell me there is someone out there with a success story! Everything I've read online has only lead me to lose hope.