Hi all. It's been a very very long time since I last posted. And a lot has happened since. Aurora is now 20months (on the 28th). When she was 8 months old she had her first seizure went blue and her heart stopped beating. This has happened roughly 2 times a month since and has been officially diagnosed for nearly 3 months now. And she has hyper mobility so she falls ever all the time. This doesn't help with her RAS as shock sends her into one.

Is any one else going through any thing like this at all?