😫😫😫

Tomorrow we have an appointment to follow up on further metabolic screenings. It seems like we were doing so well and then everything is falling apart. I used to look forward to doctor appointments where I basked in the praise of how well we were doing. Now it’s just looks of pity because they know we’re having struggles. Still blessed with my sweet little man but I dread any bad news now.

On the upside, he was smiling several weeks ago, and then regressed, and now he’s started smiling again which makes my heart so full