Anyone experience catamenial seizures

Hi everyone,

I normally don't post but wanted to share for anyone who has or is experiencing premenstrual seizures or known as catamenial seizures.

I've been going through it about over a year. Still not officially diagnosed yet but I use glow for tracking and like clock work before my period and just before or on ovulation I have a seizure.

Varies 20 sec to 2 mins. I'm conscious but it starts with me feeling off, then tears,, teeth shattering, I can scream or make a noise then my arms or legs shake. My body is stiff.

Afterwards I feel confused or tired or sometimes a big relief of pressure release and get up and go normally.

EEG was normal, neuroloigat wasn't helpful though I needed therapy due to history of trauma, he wouldn't discuss menstrual cycle or hormones.

I did have a hormone test, my estrogen in particular was so low that my hormone readings were like a pre menopause woman and I'm only 38.

Currently on CBD oil for 3 weeks, they haven't stopped the seizures sadly.

My homeopath is recommending I see a specialist to go on a more natural form of hotmone replacement therapy.

I was on the pill for a very long time and have been off it now about 5 months.

It's frustrating that doctors know so little about this condition.

I'd love to hear from you if you've experienced this, your not alone ❤

Nat