thanatophoric dysphasia

Kristina • I'm a married stay at home mom, to a handsome 5 year old boy, and an angel baby girl, a 8 month old boy and are now pregnant with #4!!!!
I went in for an ultrasound yesterday for my 22 week anatomy scan, they thought the baby had trisomy 13, went to a genetic hospital and got some testing done. Found out my baby girl has thanatophoric dysphasia. Her heart and arms and legs are not growing like the should. There measuring 14 weeks, when her belly and head are measuring 22 weeks.She has no lungs. She has to much fluid on her brain. I'm so sad. They told me she won't make it but a couple minutes after birth. I'm so depressed I love her so much already this is going to be hard. Has Anyone gone threw this? How did you cope?