Lichen Sclerosus

My son got diagnosed with lichen sclerosus, LS. A skin disease locates at the private parts. I ofcause googled and found out its rather unknown. So have you heard of it? Do you have it? A family member? And if so, how did it go for you, what did you do and all?

We have to have him circumcised now he has a full phimosis causing problems with peeing