Please read, urgent 💔

This morning my husband and I went to see a specialist about some concerns about the baby's brain from my last anatomy scan and they diagnosed him with semi lobar holophosencephaly. Where they baby's brain didn't develop as it should. It could lead to anything between him having a hard time learning things to his body not knowing how to breath or swallow. We were told there is nothing we could do but get an MRI just to see exactly how severe it is.  If there is anyone with any kind of knowledge or experience with this, please share. This is our first pregnancy and we're completely heartbroken.