Anyone baby has milk soy protein intolerance?

Question

Anyone baby has milk soy intolerance ? Would like some seeks some advise.
I have been suspecting my baby has it since he has bad rash, vomit every meals, and macus poo....
I asked his Peds, he mentioned at 5 mo age, if we get tested, it might not be accurate. Cutting out food from my diet will be best way to see it for now. 
I have been cutting out most milk and soy protein in my diet, but it is very hard, always have a little left out especially when eating out. also I pump/EBF, my supply been low, so been using freezer breast milk which I used to drink lots of milk.....Soon I might need formula supplement.

Questions: 
Did your baby get tested ? What and how is it tested?
When does your baby out grown from MSPI? Or does it grow into an allergy ?
Can I still use my freezer stash breast milk since I used to drink lots of milk... But I don't want to waste my liquid gold.... 😫? Is using the freezer breast milk has more goods than dealing with the intolerance ? 
If I need to have formula supplement, any suggestion on the brands ?  If is prescription formula, does you insurance cover it ?

Thank you in advance for your information ! Hard to see my baby suffering from it... Hope he out grown it soon

Answer

I found this link to be really helpful in the beginning. http://www.hamiltonhealthsciences.ca/documents/Patient%20Education/CowMilkProteinAllergyWhatToEatBreastfeeding-trh.pdf

Answer

My son has a suspected milk protein sensitivity. He'll be 6 months on the 29th. I've had a feeling for a while that something wasn't right. He had horrible reflux, bad gas, constipation, eczema, and a diaper rash that would not clear up. We don't see his actual pediatrician unless it's for a well check up/shots so the doctors that he had seen, knew nothing and kept dismissing me, telling me his symptoms would improve. Finally at his appointment last week his ped listened to me and said we should try soy for 2 weeks, if it works we know it was the milk protein, if it doesnt, we would switch to nutramigen to avoid both soy and milk. He told me the only reason no doctor listened to me before was because my son was gaining weight, despise all of his symptoms. He didn't get diagnosed with an actual milk protein allergy because he didn't have bloody stools, but instead, it's a sensitivity.  One week on soy and my boy is a new baby! 
If you feel like something is wrong, keep pushing until someone listens to you!

Answer

Just want to add my son is allergic to Milk protein we did a blood test around 2 years. I regret waiting so long. It is awful to have to hold down a toddler to take a blood test. If you decide to test do it earlier rather than later or if you can have it done at kids hospital  they have a new device that completely numbs the spot where blood is taken and is 1000x better. 
2. I personally avoid soy and never give it to  my kids in anyform. For cows milk protein it take about a week to get out of your body .. so  don't expect to see results unless you really quit the dairy. 
3. My ebf son tested allergic to Milk and eggs very minor nut allergy. He still gets full body rash with milk but is now fine with eggs at 3 years. I ebf my son till be was 28 months

Answer

My LO has milk and peanut allergy. Did a test allergy about 3 months ago because of her eczema (still dealing with it on her cheeks, it gets so bad oozy weepy :() anyway, i was ebf and pumped over 2,000oz that i had to dump because i ate a lot of dairy stuff :( broke my heart! She is on nutramigen an hyppoallergenic formula. Thankfully, my insurance covers it because it is soo expensive!

Answer

My daughter had it, we found out when I had to switch her to formula at 2months. The Dr tested her bowel movement since there was blood in it. I don't do dairy or soy so we didn't know. Had to put her on a medical formula that I got from the pharmacy. She's almost 5yr old now and she eats organic grass fed butter, organic cheese and yogurt. We do almond or coconut milk. I limit her dairy because her eczema on her face starts breaking out if she has too much or if Grandpa and Nana give her too much milk products at their house(ice cream, high processed cheese).

Answer

I am a total fat kid at heart so I've been making tons and tons of substitutes at home for the things I love most! (Cookies and candies, coffee with cream) 
I make lactation cookies with pumpkin, substitute egg with soaked chia seeds (2tablespoons for about 6oz hot water) there is a great brand of chocolate chips out there that are called enjoy life that are made from coco and various oils, oh they are so good. SO delicious coconut ice cream is spendy but delicious, lots of sorbets don't have dairy or soy. Usually there are coconut coffee creamers too. Earth balance makes a buttery spread that is dairy and soy free, it is the container with the red top it is delicious. I also LOVE bread, so I now try to find the bread in the bakery area wit no soy or dairy, sometimes it is tricky but sometimes it is the best ones there. I don't remember is CA has Smith's food and drug store or not but that is where I do 90% of our grocery shopping. Hey will also order things for you if you ask. If you're an oatmeal person (I wasn't until I hear its good for production) simple truth has a wonderful cinnamon cranberry organic instant oatmeal. And most cereals, even the junk food ones are dairy/soy free... lucky charms all the way! The formula we got they have a plan to help you out, I'm not too sure how it works as we hardly ever use it so we still have the free containers they sent us months ago. Our pediatrician gave us one very small can that we used at the beginning and we would substitute when I was all chapped and bleeding, I would pump instead and the next day feed what I had pumped. We figured if the milk was just a day old then it was okay to give her because it wasn't introducing a higher amount of milk protein back into her system.

Answer

This is so hard. Our baby is also allergic to milk protein our pediatrician told us that most babies that are allergic to milk proteins are also allergic to some other allergens so I have cut out all milk and dairy products soy, nuts and eggs for the past 20 weeks. They found out about her allergy at one week because she was having 15 or more bowel movements a day. So they tested her poo. It has been very challenging and made it so that we don't have a freezer stash because milk protein can take up to eight weeks to get out of a baby's system and up to 4 weeks to get out of yours. So we were not able to feed her anything that I had stored for her. After being soy free, dairy free nut free and egg free or eight weeks it was like a switch all of a sudden our colicky baby was the happiest baby on the block. I tried adding in eggs today... she's been a fussy baby all day. Back to egg free for me. Check labels very carefully, dairy and dairy subtitutes are very sneaky! Do you live in the states maybe I can give you food suggestions. Good luck momma. Oh our pediatrician recommended nutragimen it has soy isolate or something, it is okay for us, she only gets it a few times a month when daycare over feeds her but it doesn't seem to bother her.

Answer

I suspect that my baby had this along with acid reflux. I was getting so stressed because he was miserable so I fed him formula and he showed immediate improvements. No fussing, no crying during and after feedings, no arching back. Amazing. I completely switched to formula and have no regrets. He is on enfamil gentlease but he also did fine on similar sensitive. Good luck!! Hang in there!

Anyone baby has milk soy protein intolerance?

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