Jacobs Syndrome

Hi Everyone,

My friend recently found out her baby boy has Jacobs Syndrome and is devastated by the news.

When I was researching the Syndrome I didn't think it sounded that bad with the exception that some children with it also have a higher likelihood of some autism.

I am just wondering if anyone knows someone/or who has a child with Jacobs Syndrome and what their experience is like? Is this Syndrome the big scary Syndrome that doctors make it out to be? Should this make someone want to walk away from their pregnancy?

Thank you in advance for your feedback. Please note that I don't want this to turn into a pro life versus pro choice debate. I want to know what others have experienced with this Syndrome.