Our baby girl was diagnosed with Ebsteins Anomaly at 19 weeks. It is a heart defect that includes severe tricuspid regurgitation. At diagnosis they gave her a 50/50 shot at making it to delivery. We were told she would need to make it to 35 weeks gestation at least to be considered viable. We had constant monitoring to look out for signs of heart failure. I worried and cried for quite a while. At every appointment I was waiting for the bad news. Then I started to read current research and found some Facebook groups where I could read current stories. I learned quickly that medicine has advanced a lot and that CHD babies defy the odds all of the time. I sit here now, at 38 weeks 1 day, and we are going into the hospital to be induced tomorrow! We still aren’t out of the woods yet, and we’re prepared for the possibility of those 3 open heart surgeries or worse, but so far our daughter has done better than expected and we pray that things will continue to go as smoothly as possible. Keep your head up!! Try to get reliable, true information. And try to read as many positive stories as possible! 💕

It's a severe heart defect. The Drs have told us our baby probably won't survive. :( just really looking for some positive support and experiences if anyone has any.

What exactly is it? Never heard of it.