Okay I’m going to try and keep this short lol. But about a week ago, I found out I have polycystic kidney disease and my doctor said it’s very unusual because I’m only 17. Well, since then, I’ve been referred to 3 different doctors; a paediatrician, nephrologist and a urologist. Basically, they all said the same thing, I’ve gotten my urine test done and blood test but that’s about it. While doing my blood test, I also found out that I have an abnormally low amount of white blood cells and the doctor said it’s “alarming” because of how low the count is. This makes sense as I bruise easily, and get sick very easily and stay sick for about two weeks. So it’s been a week and a half since all this and I still haven’t gotten really any help aside from rapid fire questions and urine tests. My question is, I don’t know if I should go back to my family doctor and see what to do next. None of the doctors that I’ve been referred to have really said what I should do next and if there’s anything to even do medication wise to monitor my kidneys. Should I go back to my family doctor and ask if there are any next steps? I don’t even know if there are any tbh.

Also, does anyone else on here have polycystic kidney disease?? I don’t know if there’s going to be a certain diet I’ll have to be on in order to monitor the growing cysts and to avoid having my kidneys fail on me. Thanks!!