Ugh SSI will not approve my daughter 😩

I have applied appealed brought in lawyers 4 times they just won’t approve her. They say she’s severely disabled but not under their rules 🤔

She has:

Melas (mitochondrial condition)

Sleep Seizures

She’s at extremely high risk for a grand mal seizure

Tremors

ADHD

1Q21.1 micro duplication

SPTAN1 so rare only 20 have it and my daughter is the 20th with it - seizure disorder

Mild Hearing loss

Vision Problems - she wears glasses

Muscular Weakness from the waist down

Balance and coordination problems - she falls a lot

Short term memory loss

Developmental Delay

Her intestine muscles do not work so she simply cannot poop w/out medication.

She’s currently doing aqua therapy and speech therapy she sees a ton of doctors.

On average misses at least 15-40 days of school out of the whole 9 months.

I’m not sure I should continue with SSI and just give up. As it seems it’s just never gonna happen She’s 8... :(

Edit it was in court

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