Ugh SSI will not approve my daughter 😩
I have applied appealed brought in lawyers 4 times they just won’t approve her. They say she’s severely disabled but not under their rules 🤔
She has:
Melas (mitochondrial condition)
Sleep Seizures
She’s at extremely high risk for a grand mal seizure
Tremors
ADHD
1Q21.1 micro duplication
SPTAN1 so rare only 20 have it and my daughter is the 20th with it - seizure disorder
Mild Hearing loss
Vision Problems - she wears glasses
Muscular Weakness from the waist down
Balance and coordination problems - she falls a lot
Short term memory loss
Developmental Delay
Her intestine muscles do not work so she simply cannot poop w/out medication.
She’s currently doing aqua therapy and speech therapy she sees a ton of doctors.
On average misses at least 15-40 days of school out of the whole 9 months.
I’m not sure I should continue with SSI and just give up. As it seems it’s just never gonna happen She’s 8... :(
Edit it was in court

Let’s Glow
Glow is here for you on your path to pregnancy
Glow helps you navigate your fertility journey with smart tools, personalized insights, and guidance from medical experts who understand what matters most.
25+ million
Users
4.8 stars
200k+ app ratings
20+
Medical advisors