Ugh SSI will not approve my daughter 😩
I have applied appealed brought in lawyers 4 times they just won’t approve her. They say she’s severely disabled but not under their rules 🤔
She has:
Melas (mitochondrial condition)
Sleep Seizures
She’s at extremely high risk for a grand mal seizure
Tremors
ADHD
1Q21.1 micro duplication
SPTAN1 so rare only 20 have it and my daughter is the 20th with it - seizure disorder
Mild Hearing loss
Vision Problems - she wears glasses
Muscular Weakness from the waist down
Balance and coordination problems - she falls a lot
Short term memory loss
Developmental Delay
Her intestine muscles do not work so she simply cannot poop w/out medication.
She’s currently doing aqua therapy and speech therapy she sees a ton of doctors.
On average misses at least 15-40 days of school out of the whole 9 months.
I’m not sure I should continue with SSI and just give up. As it seems it’s just never gonna happen She’s 8... :(
Edit it was in court

Achieve your health goals from period to parenting.