Lyme + POTS

Rin • ° ASD ° Bisexual ° INTJ ° Atheist ° Sterilized °

This is a long one, just a warning. So back in November I unknowingly got bit by a tick due to taking in a stray cat that I didn't know was covered in them (yes, I'm apparently a dumbass lol). I started to feel terrible in December and ended up going to the ER because my heart was beating fast and hard, I felt like I was having a heart attack. I had a rash on my stomach too, which they noticed, but I didn't care about it because of my heart. They had no idea what was wrong with me but gave me metroprolol to control my jumping heart rate.

January passed and I was still feeling bad, I began to have extreme fatigue and sleep constantly. February came and I started getting neurological symptoms as well like not being able to see, blurry, not being able to stand for longer than a minute without almost passing out, can't read well, can't drive, disorientation, memory loss, etc. Went to the ER again and they said I was crazy and to go home, told me to go to a psychiatrist 🙄. Went again a few days later because my general doctor told me I needed admitted and tested immediately and that the ER doctors are idiots. While I was there that time I still didn't get answers, but someone suggested it was lyme disease. My story, symptoms, and rash added up and it was concluded that I likely have it so I began to be treated with antibiotics.

I got something called a tilt table test yesterday due to my heart rate still going crazy when I stand up. Apparently that is common in people with POTS. The nurse I had told me that my results look like what is typical with POTS patients. I don't have the blood pressure Flux or swelling though. I looked it up and lyme is a cause of POTS. So I potentially got a disease from my disease.

I'm just wondering if anyone has ever went through this or something similar. Did you completely recover from lymes? Did POTS go away?

Honestly I was a very active person prior to December, and it's heartbreaking that I may not ever be able to exercise again. If I have to listen to the sound of my own heart beat constantly for the rest of my life, I think I'll go crazy. I'm a type 1 diabetic as well, and the medicine they have me on blocks me from feeling my low blood sugars (adrenilline block). It has been making me quite depressed since I found out. 😕 I'd honestly just like to hear anything from people who have had lyme or POTS or both.

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