Feeling overwhelmed with medical diagnoses
Hi everyone, I don’t really have a question but just posting here as a space to share my feelings. My sweet son has received two diagnoses in the past month. In July he was diagnosed with autism spectrum disorder level 1 (in conjunction with speech delay) and this morning he was diagnosed with NF1. I have a mix of emotions because both of these items are things I have been monitoring for for a long time (since May 2020 for the NF1 and since Sept 2020 for the autism). We live in a city with ample resources to support both him and us as a family — and for that I am very grateful. I am also feeling very overwhelmed with the number of appts (he is in speech therapy twice a week already and will be starting ABA soon which could be up to 20 hours a week) plus the risks for complications (from the NF1) like cancer and vision loss. I know there is only so much I can do as his mom and I’m doing all of those things right now (coordinating all of the appts with regard to scheduling, insurance, advocating for him etc) but I still feel scared and overwhelmed. This is really hard. But at the same time in thankful for the diagnoses because that allows him access to good support and close monitoring. Thanks for reading and for any words of encouragement.
Achieve your health goals from period to parenting.