Psoriasis 😯😕😢 anyone else have it?

Question

I'm 31 and I've had psoriasis since I was about 16. It truly has been hell. Growing up I always had to cover up and I was the girl wearing jeans and sweaters too pool partys. I tried sooooooo soo many creams and uv light treatments and pills nothing helped. I finally got on embrel injections when I was about 25 and it cleared me right up and I was able to live a happy life again. It was life changing... I actually owned shorts and bathing suits and tank tops. I was comfortable and confident. I am now 17 weeks pregnant and had to stop my embrel injections and my psoriasis came back so fast and so brutal. I have scales all on my forearms, legs, back , chest and even my scalp. I feel so horrible about it. I know the risk of the medication to the baby is surely not worth it but here's the crazy thing. My primary  are dr says he doesn't see a real problem with it while I'm pregnant but my obgyn says no way, we can't take a chance. So I'm listening to him of course but I'm just having a hard time dealing with it. My hubby doesn't make me feel bad at all about it he knows when I'm feeling bad and will rub my arms and put lotion on for me and tell me I'm beautiful as he kisses it BUT...I still feel horrible. Anyone that has seen the red flaring scales that crack and bleed know how hideous they look. And like I feel so insecure when we have sex because we all know despite what a man says that's got to be such a turn off for him. I can feel him rub up against it when he grabs my legs and he quickly moves his hands. And I know he doesn't mean it like that at all but I just have such a hard time with it. It's hard to shave my legs because I come out after bleeding everywhere but I do it to feel better about myself I couldn't imagine having hairy legs too with it. I'm just so depressed about it because I'm not due until Sept 3rd so I will have to go all summer pregnant and hot and covered up. Ugh I'm just misserable and just wondering if anyone else is going thru this too? How do u cope? Or what things are ok for it while pregnant? 
**I added a photo incase anyone doesn't know what psoriasis is or thinks I'm being a baby about it.... (I hear that alot from people but be honest if this was all over ur body it wouldn't be so easy either)

Answer

My dad has it very bad and the only thing that helps him is prednisone. There is some type of laser treatment available now that he is looking into.

Answer

My father has it pretty bad. He found relief with coconut oil or even slathering up with vasaline. Also he finds it healing to get in the salty ocean water and lay out in the sun.

Answer

I can't tell u ladies how much ur comments meant to me at this moment. Even though I don't wish this mess on Anyone I do find comfort in knowing I'm not alone. I find alot of people brush it off like u just have a bad rash or something but it's so much more physically and emotionally/mentally. I truly think anyone battling this is very strong inside. Just to share I found that embrel injections cleared me right up.  They didn't hurt at all and I got results very fast. They Andrew quite pricey for insurance so it takes some time to get them approved but other than that I recommend them. Right now since I'm pregnant I can't use them but I do go to the beach and fill up jugs of salt water because fresh salt water only from the beach works really good for me to soak or even put in a spray bottle and spray myself down with. I also use a cream a foam and a lotion all the same medication yet diffrent forms. It's called clobestasol. The foam is prescribed for scalp but I use it all over and then use the same medication in cream and lotion and it works really well for anyone else that's not pregnant and looking for help with it. I wish all u ladies the very best and know I'll have u all with me mentally knowing I'm not alone. Thank u again

Answer

I asked my friend if he's tried using a low dose of hydrocortisone cream and wrapping with Ceran wrap to help the cream absorb into just his skin and not a bandage or clothes and he gave it a try and I saw him a month later and he was shocked it worked so well for him. Have you tried that?

Answer

I just recently found out about 3 years ago that I have psoriasis and not eczema. It's horrible! I have it all over my body especially my feet and hands. I constantly cover up and hate when my bf touches me. He says I'm beautiful and makes me sit still while he touches me. I just want to run and hide. I'm so tired of wearing socks and jeans. I want my flip flops and capris back. 😔 I've tried many things and nothing is working. My dermatologist says it's just stubborn. I'm afraid that when I get pregnant it's going to get worse. So I feel your pain sister. Does anyone have any suggestions on how to get this mess under control? Summer is vastly approaching!

Answer

I have eczema that's pretty bad so I don't fully understand what you're going through but I definitely understand some of it. I have had it since I was a baby and was so embarrassed all through out school so I always tried to cover it. I have it on my scalp, on both of my arms and both of my legs, and under my eyes. I've had so many different creams, and they help but I wish it would just go away😢 doctors always told me I would grow out of it and here I am 21 and still have it.

Answer

Ive had it since I was around 12. It comes and goes in stages. This pregnancy has thrown me into some major flair ups. I have it on my scalp, in my ears, on my elbows, and under my breasts. It's terribly uncomfortable but I know there is nothing that can be done. I'm hoping for a healthy baby and for my hormones to level out so that my flair ups lessen. Good luck to you.

Psoriasis 😯😕😢 anyone else have it?

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