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Oh also, with ultrasound they’re looking at shape of uterus and if ovaries look good (cysts or not). With HSG they’re looking at thickness of uterine wall as well as if your tubes are open. At least, that’s my understanding
What happens next?
After 3 and half years of TTC and having to go through miscarraiges I went to the Drs to start trying to find out what the hell is going on....
Expecting my GP to not listen or fob me off (happens a lot when you have a connective tissue disorder - half of them dont even know how to say it never mind the name of my condition!) but I was pleasantly suprised!!! She knew about my medical condition and even said herself that it can effect pregnancy and cause miscarraiges! "Shock!!!"
She took swabs and checked my cervix (everything looked fine 🙌), ordered an ultrasound, booked in bloods to check levels at day 1-3 and after ovulation and asked my DH to ask his GP for a sperm analyisis. Once we have all results we'll be refered to a fertility specialist to see what our next move is. I'd mentioned how a lot of people with EDS (Ehlers-Danlos Syndrome) also have the MTHFR gene which means you dont process folic acid properly and she agreed so has noted it down to pass on to the fertility doctor as if Ido have it I need to stay away from folic acid and use folate instead.
Feel like we maybe getting somewhere :)
Anyone else gone through this testing? what was your outcome and what was the next step? What will they look for with swabs, ultrasound etc? I have no idea what they will be looking for other than my progestrone levels with the blooda taken during/just after ovulation Thanks in advance!
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I also have EDS and have been TTC for 16 months. So far in my journey I’ve have 1 external and 2 internal ultrasounds, a hysteroscopy to check a tissue sample, and HSG with dye to see if my tubes are open, and at least 45 tubes of blood on varying days 😂. My husband also had a semen analysis. So far all the testing from that has been “normal” expect that I have an arcuate uterus as well as low vitamin D, and possible PCOS. I just don’t ovulate and they can’t figure out why 🤷🏼♀️My first MD (primary OB) put me on clomid at varying dosages until ovulation was confirmed. When that didn’t work after 3 months I saw a RE. She is now considering a med change to femara. Neither of them are super familiar with EDS unfortunately. So I had to educate THEM about it (annoying 🙄). But my clinical geneticist who is super knowledgeable about EDS is also an OB, so she will be following me through pregnancy as well. So I guess expect a few more tests, maybe an HSG, and a whole bunch of doctors! I’ve heard they can do progesterone shots and other things to help a pregnancy stick so maybe they would consider that for you?? Hope this helps and helps answer some of your questions. I will keep my fingers crossed for both of us!! I actually got a faint BFP at 11 DPO yesterday so here’s hoping it sticks!! 🤞🏻🤞🏻🤞🏻
Thanks for the replies!! really appricate it! and congrats!! Hope you little one sticks to 💗💙 Im in the UK so most tests have been ordered from my GP and then up at the early pregnancy unit (as they have the internal scan equipment there. Once we have all results back depending on results I'll then be sent to the fertility drs. Hoping its something simple and we just need an extra bit help, my ovulation seems to be fine, getting positive tests for LH surges around day 11 - 14 with pretty much regular cycles around 26/27 days but bloods hopefully will tell me whats going on to. Miscarriage wise Im hoping my progesterone is whats causing them so we can have the injections to help keep levels ok. At least we know we can get pregnant even if it has been taking around a year each time 😔
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