POTS//Pregnancy//Guilt

Em

If anyone could give me their opinion or even just some words of advice or support I would really appreciate it. My health is very up in the air and it has been for the past 3 years. I'm Almost 100% sure that I have postural orthostatic tachycardia syndrome. Here's a little bit more background story

When I was fifteen I had an ablation for SVT. When I awoke from surgery my doctor told me there was about a 75% chance of it being successful because he was not able to a blade all the nodes that he wanted to. Apparently one of the nodes is too small and too close to the wall of my heart and he didn't want to accidentally hurt me. After the surgery I also had complications. I bled out of my left femoral artery. For about 2 months after my heart surgery I felt back to normal. I was ready to play sports again and live my life. After these two months were over I started to have symptoms again. However they were not the same as they were before. Before my heart surgery the only symptoms I had noticed were fast heart rate and palpitations. My heart rate would randomly get up to 200 beats per minute. Since the surgery my heart rate does not get that high but I am much more symptomatic. Rather than my heart rate acting up randomly it now acts up with exertion or standing up. I've done many at home tilt table test and recorded my results. They are all indicative of pots but I have not been able to see a doctor because I ran out of health insurance. I am not the only person in my family who is suspected of dysautonomia. My little sister has neurocardiogenic syncope which is a form of dysautonomia. My other sister has ehlers-danlos syndrome and also thinks that I have it as well. I am now currently pregnant with my first child. I know that pregnancy does increase your heart rate. However I have been experiencing symptoms such as blood pooling, tachycardia, heart palpitations, sweating, presyncope and syncope, shakiness, shortness of breath and many more. Pregnancy has just increased these symptoms. And to make light of this situation I have not been pregnant for the last 3 years 😂Right now I am only ten weeks pregnant. I am struggling very hard. And feeling very guilty. Doing small things such as washing dishes or taking showers was already a task for me but now it's even harder than it was before. I just want to have things nice for when my husband comes home from work. I'm afraid of being seen as lazy but I'm just sick. I've been feeling a lot of guilt and not being able to complete all the things that I want to do.

My husband and I recently got married and I now have health insurance again. My new OBGYN says she is going to refer me to a Cardiologist. Should I express my concerns of pots syndrome? Today when I woke up in the morning I took another at home Poor Man's tilt table test. I'll share my results here to:

-Resting:75bpm

AFTER STANDING

1 minute:118bpm

3 minutes:124bpm

5 minutes:132bpm

7 minutes:142bpm

10 minutes: 147 bpm

gagging, extreme nausea and pre syncope.

-67bpm increase from laying to standing.

-Could not check Blood Pressure.

-Syptoms: dizziness, nausea, fatigue, shortness of breath, tingling, sweating, blood pooling, palpitations and fast heart rate.

- before pregnancy my poor man's tilt table test was the same. It just took a little bit longer to get these results.

Could anybody please let me know what they think? Any kind words at all from moms or other people suffering from chronic illness would be greatly appreciated.