Craniosynostosis...prayers..anyone been here?
Can you guys keep my 7 month old son in your thoughts, i thought he was going to need a helmet for his head shape, instead we are being referred to a cranio-facial surgeon to confirm if he has Craniosynostosis specifically Sagittal synostosis. Which is when "early fusion of the suture that runs front to back, down the middle of the top of the head. This fusion causes a long, narrow skull. The terms used to describe this shape are scaphocephaly or dolichocephaly. This is the most common form of craniosynostosis and because the skull cannot effectively grow sideways, it overgrows front to back, sometimes with a narrow occiput (back of the skull) and overly large forehead (also referred to as frontal bossing)."
To fix this there are two options, one where they take pieces of the skull out so the brain can grow correct and would need to be in a helmet for 7 to 12 months but usually that is for babies 3 months and younger
Option 2 is refered to as open surgery where the basically reconstruct the shape of the skull and he would come out of surgery with a different shape head. This surgery takes longer and requires 3 to 4 day hospital stay usually but requires no helmet and this is usually done for babies around Braeden age. (7 months)
Craniosynostosis can either be a birth defect or can be caused by genetic reasons but with braeden developing fine and growing great it is more a congential occurrence.
There is a small chance he doesn't have this but with his head shape, missing soft spots its more then likely Craniosynostosis.
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